GLUT-1 DS Conference
This entry was posted on 8/13/2009 5:13 PM and is filed under uncategorized.
What a great visit we had with the Stovers from Alabama. They loved Wisconsin and decided they could live here if it wasn't for the cold and snow. After a few days here, we went to the first ever GLUT-1 Conference in Hoffman Estates. We were lucky it was so close to home. GLUT-1 families from all over the world came for this. Our Doctors and research team from New York spoke, we were able to meet many other GLUT-1 families, share stories and recipes, it was quite a gathering. Brooke and Brady enjoyed a fun filled day while Ed and I attended the Conference.
August 3rd Miss Brooke had her 12th Birthday. She was SO excited for her Birthday, we had a nice party with family and friends, thank you all for the gifts chosen especially for Brooke. Looks like another year of "best dressed"!
JOIN US FOR SOME FUN on Sunday, August 30th . The Tichigan Lake Lions are hosting their Car Show. Location is Hwy. 164 & Jensen, in Tichigan. 9am - 4pm with DJ Don Kasper at Noon, RUPENA'S Pork Chop Sandwiches, beverages, craft fair, and 3pm trophies and awards. There is an exciting raffle the day of the car show. They are raffling a 350 CHEVY ENGINE (valued at $3,500.00) or if you choose, you may opt for the $1,000.00 CASH! The Tichigan Lions have offered the proceeds from the raffle to benefit Miss Brooke. As many of you know, there are various therapy opportunities we provide Brooke to increase her independence, confidence, and overall quality of life. We are considering introducing Hippotherapy again (horseback riding...which she LOVES), and now we are doing Hyperbaric Oxygen Therapy, as recommended 2 months post stem cells. Thank you A&M Hyperbarics for Hope for making this possible! Raffle tickets can be purchased from any family member, they are $5 each, or 3 for $10. We appreciate your support, hope you can join us that day, and as always, thank you for your many prayers. Our blessings are endless. Look for the "red shirts" at the Car Show!
