There has been some interest generated as a result of the media coverage of Brooke's symptoms and journey to China for stem cell infusions.  Please, families, if you wish to contact me direct, email me and I can call you and hopefully answer your questions about how we found Brooke's diagnosis and the steps we have taken to treat it.  vbarels@aol.com   We are in this together, parenting special needs children, and I support sharing stories and resources!