Brooke is in physical training right now with James.  He was the one to do accupuncture this morning also.  After that experience, I didn't think Brooke would let him anywhere near her.  I will not sugarcoat this, it was truly traumatic.  He intended on inserting needles in her lower leg and also her forearms.  Well he put the first 3 in her lower leg on the right and oh my she was screaming.   She was kicking and moving her arms and flailing.  He went to put one in her arm, right near the elbow and I thought are you crazy??  She is moving too much.  I told him no more, take them out, right now.  We are done with this.  He seemed to think she would be okay after the needles were in, course I knew better and said stop.  She was far over the edge, no return.  It didn't help that 2 more nurses came in to hold her limbs.  It was pure torture.  Maybe it works for some, but not for us.  I have only seen other kids with the needles in their head, one was being done just now and she seemed to tolerate it.  I cannot see how.  There is an adult here with ataxia and she said the needles hurt.  I was very upset and we will not be trying that anymore.  We then went for a walk, went to the store a bit, it's sunny here but breezy.  Maybe mid 50's or so.   We need jackets today.  nbc guys offered to take us to West Lake tonight, there is a street there famous for shopping that they know of, will be better than the stores within walking to hospital.  Will be nice to do something fun after today's awful experience.  We met with the Doc again this a.m.  They do rounds every day.  He is the one who will do the injections.  Brooke will go down to the third floor to a surgery room.  It is sterile and she will be sedated.   She will lie for 6 hours on her back following.  NO food, only water and she will drink while lying down.   nbc is talking about doing a live broadcast on the Matt Lauer Show.   I'll have to be careful not to bash the whole accupuncture idea.  They did interview right after, I was pretty upset still but kept positive about why we are here.  We are doing the right thing, just accupuncture is not in the mix for us.  Thank you all for your prayers, she will go in tomorrow at 3:30 for her first injection.  Will keep you all posted.  Thanks for caring.  Vicki and Brooke
Tomans are doing great, and a big help both of them.  Bye for now.

 

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